A couple of weeks ago we were at the hospital for an appointment with the allergy dietician.
Tim was very brave while they did the skin prick tests and took bloods.
He was tested for numerous things including, dairy, soya, nuts, coconut and gluten to name just a few.
Once again he has come back negative to them all, this does NOT mean he is not allergic, it just means that he is not anaphalytic to them, he still needs to avoid them and trial things occasionally, if and when he is completely fit and healthy. Currently when he ingests any of them he can have reactions ranging from moody, to rashes and breathing issues.
We are currently back to avoiding soya pretty much completely as we had been allowing more soya products in (soya lecithin) and he seems to have been having more issues.
Most importantly from the appointment we discovered that he has not gained weight in a long time, they had not been plotting it on a chart so no one had noticed, they are currently looking at the last 4months, but they are unable to go back any further than that as prior to that he was still recovering from the kidney issues.
So this is now our latest problem, trying to keep an eye on his weight, without making a big deal of food and meal times and hope he starts gaining soon.
This week we also ended up at the GP due to a rash which turned out to be viral, but she enquired about whether his stomach is normally this swollen. I explained that we have mentioned to other consultants etc, but it swells everyday as the day goes on and all appointments are in the morning, currently the kidney specialists think is is allergy related and the allergy people don’t seem bothered, but I have been saying for a long time that it can’t be right for him to be swelling everyday.
So it was great to hear someone else say that they think there is something amiss.
She has said that she will contact the kidney team and discuss it with them, but she has also referred him for an ultrasound on his stomach, saying that if that doesn’t show anything then it would probably be worth getting him referred to a paediatric gastro specialist.
Once again we are in a limbo of waiting for appointments and see what happens next