Lots of changes and firsts

I know I have been quiet for a while, but my life has changed drastically, for anyone who isn’t already aware, now it is just me and the boys.

But after an exciting week I thought it would be a good time to share some of the boys firsts.

It began last weekend

Due to Tim being in hospital at various points this time last year he had never had a birthday party, so last weekend was his first birthday party, with a few of his friends from nursery, they all seemed to have a great time, playing games and eating chicken nuggets and chips.

This week was Tim’s first swimming lesson in the pool on his own, without me. He was amazing, I told him to go and sit with the other children on the side and he did it straight away, joining in with everything. Well almost everything, at one point he did stop halfway across the pool to shout

Mummy, I can’t do it

as soon as I told him he could and was doing great he got going again and was fine for the rest of the lesson.

We had a first of being in a new hall for Brownies and Guides this week as the one we were meeting in is due to be demolished, not only was it a new venue, but also a new night for the Guides and the first time that they have started meeting at the same time.

and probably the biggest first of the week was Sam’s first day at school

and on a lesser note, we also have our first Aloe Vera plant, kindly donated by a friend.
I am not sure how long it is going to survive as Tim has also had his first taste of Aloe Vera, when I turned around to hear him saying

can I eat it?

I was very quick to remove it from him!

We all have a Lizzie inside us

The last couple of weeks have been very difficult around here.

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Tonight I sat down with the boys and watched an episode of Katie Morag

It was Katie Morag and Izzy in this episode Katie has an ‘appointment’ with her mum to go out and play Pooh-stick, but her mum ends up being too busy.

She visits Grannie Island, who talks about this girl Izzy, and they go on an adventure to find her, for anyone who hasn’t worked it out for themselves yet it turns out that Izzy is no one other than Katie Morags on mother.

And there it is, we all spend so much time working (or whatever it might be) so much of the time, and forget that sometimes our children just need us to be children with them.

So I apologise to my boys that the last couple of weeks have been so tough (I know that things aren’t going to improve in the near future) but I promise that I will make sure that I take regular breaks from the things that I think I need to do and take the time to be a child with them.

Egg Trial – stopped

After a rough night for Tim

Very unsettled, woke numerous times, dosed up on medicines.

Woke with no duvet at the wrong end of the bed.

When asked if anything hurt before medicine he said his stomach.

When he woke again and asked the same question he said no, but said he

‘tummy umcommball’

translated as uncomfortable

so we have made the decision to stop any egg for a while until everything is back to normal and rethink then

it looks like it means that occassionally he can have a bit of cake with egg in, just not regulalrly, but we will test it out again at some point to see how it goes.

Egg Trial

Apologies for not having written anything for a few days, but as usual life got hectic, we were busy visiting family and friends and Tim has had to take his daily dose of cake with him.

As you will see from the pictures there have been days when I have struggled to get him to eat them, I have had to encourage with decorating etc, anything I can to get them eaten.

Generally he hasn’t seemed too bad, but as time has gone on he is generally seeming more bloated and has not been pooing as regularly as he had, today he even came to find me upset and crying moments before doing a poo, so although we don’t think he is having a bad reaction we still suspect he is reacting in someway. Which is why we have remained on the cake a day rather than moving onto the next step of the ladder.

We see the dietician this week so will try and keep it up until then and discuss with him to see what he thinks we should do.

If we are advised to stop by the dietician at least we have some nice chocolate chip filled cakes to end with. A lot of allergy parents will complain that friends and family just don’t understand, or make any effort to support you, but occasionally there is someone who does everything they can to involve your child and make them feel normal,

So thank you V for a wonderful ‘normal’ afternoon.

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Egg Trial – day 2

Today is the 2nd day of Tim’s egg trial.

We started the day with a trip to the doctors for Sam as he is still having constipation issues, the doctor has put him back on the same medication as before and has said he could be on it for years.

So once we were home I felt I was back to dosing everyone up again, Sam with his medicine drink and Tim with his cake containing egg.

Unfortunately today he was not so keen to eat it, there was an issue with him spilling his drink and then getting upset,
so I don’t know whether he didn’t want it because

  • he didn’t fancy cake today,
  • it is making him feel unwell in anyway,
  • or just because he had got upset by spilling his drink,

I did manage to get him to eat it all, but had to feed every bit of it to him after the first couple of bites.

Lets see what tomorrow brings

Egg trial – day 1

As I mentioned yesterday today we started Tim’s Egg trial.

This morning the eggs were picked.

And Tim helped to make the cakes,

The piriton was packed ready for a busy day, just incase it was needed while we were out and about.

egg trial day 1 (11)

Then we left the house and Tim ate his first cake while at a coffee morning.

egg trial day 1 (13)

He is now tucked up in bed and has been fine all day, lets see what tomorrow brings.

 

Eggs

eggsSo it is time to think about trialling Tim with foods again.

This time we are going to be giving eggs ago

Why have we decided on eggs?
Well basically because we have never been 100% sure that he is allergic to eggs, when we stopped the eggs he had gone through a phase of eating a lot of egg/egg containing foods, but around a similar time we also stopped soya, because stopping the eggs hadn’t really done the trick. So we have decided that rather than going for milk which the dieticians always seem to suggest first we want to try a ‘test’ that we think he will hopefully pass.

Fitting a food trial into life can be difficult, I would love to start it today, but we have a meeting tonight about Sam’s new school and friends will be looking after him, so although we hope he won’t react it seems unfair to give him something containing egg and then giving him to someone elses care.
So the trial will be starting tomorrow, I have already discussed with nursery how we are handling next week when he is in all day, fingerscrossed we get that far.

So which face will he be pulling when he has some cake made with eggs tomorrow?